Advocate Now!

Here are 3 things that you can do right away to help #stopPMPRBnow:

  1. Email decision makers – quick!
  2. Tweet to decision makers – really quick!
  3. Share with your social network and ask for their help – really important!

If you did #1 or #2 above,

  1. Follow up with decision makers by re-sending the email letter or tweet, even once a week, until you hear back – only three months to make our voices heard!

We are so grateful for your help! Let us know how your advocacy efforts went by emailing us at Definitely let us know if you would like to be part of our ongoing efforts advocating to #stopPMPRBnow. We only have three months – until January 1, 2021 – to make our voices heard!

To learn how to use the tools on the #stopPMPRBnow e-advocacy platform, check out our short video 👇


We want to hear from you!!

We hope you will join our advocacy efforts by using the tools on this website. Please reach out to the Canadian Association of PNH Patients (PNHCA) with any questions about our work, to share your PNH stories, or to learn more about our advocacy campaign.

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