We know that PMPRB reform is already having a quantifiable, detrimental, if not deadly, impact on Canadian PNH patients by limiting access to an approved treatment option, clinical trials and global innovations in PNH therapies – all of which are helping to improve, extend and save the lives of PNH patients in other countries.

Join our #stopPMPRBnow campaign to urge the federal government to put a stop to the proposed PMPRB reform until we can be certain that the lives of Canadians won’t be put at further and unnecessary risk.

In the boxes below, please enter your name and your email address, choose your province and enter your postal code and the names of the Prime Minister, the federal Minister of Health and the Minister of Innovation, Science and Industry will appear. You’ll note that your email will automatically be copied to the leader of the Official Opposition of Canada, your federal Member of Parliament (MP) and your provincial Minister of Health. The content of your email will auto-populate, but before sending it off feel free to make any changes so that it’s more personal.  You’ll notice your name is included at the bottom of the email, so whenever you are ready, go ahead and hit send! You’ll get a confirmation that your email was delivered, and you will receive a copy of your email in your inbox.

We’d love to know if you get a response from any of the decision makers or anyone copied on your email. Drop us a note at: advocacy@pnhca.org.

NOTE: If you don’t have a Canadian address, you won’t be able to use the email tool, but you can still participate in our campaign by tweeting to Canadian decision makers here.

Privacy Policy

The Canadian Association of PNH Patients (PNHCA) respects the privacy of each individual who uses this website. The limited identifiable personal information collected through this website (i.e. email addresses) will never be used or released by our organization without the written permission of the individual.

The email tool is not available right now.

If you have any technical questions or problems using this tool, please email us at: contact@pnhca.org.