We urgently need your help – and the help of your personal and professional networks – to #stopPMPRBnow!
Please follow the six (6) easy steps below to send out the “Friends & Family” email to encourage others to join our campaign – their participation is critical to our success!
- Step 1: Open a new email in your personal email inbox
- Step 2: Copy and paste this wording into the new email *If you are experiencing difficulties with this document please email us at firstname.lastname@example.org
- Step 3: Customize the yellow highlighted sections within the Friends & Family email
- Step 4: Include a brief version of your personal story in paragraph 3 to help others understand why this issue is important to you, and therefore, why it should be important to them – and motivate them to take action! [This is optional – you can also send the email as is]
- Step 5: Send the email to anyone in your network that you think would be willing to participate in this campaign – friends, family, co-workers, neighbours
- Step 6: Follow up with your network to remind and encourage them to take action!
Anyone can participate – even those not directly affected by PNH or other rare diseases.
The countdown is on – we have less than three months to #stopPMPRBnow!
To learn how to use the tools on the #stopPMPRBnow e-advocacy platform, check out our short video here